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Senior project aims to raise funds for CCA

September 20, 2010
A senior project aims to raise money for a charitable organization that strives to make life easier for children suffering from a rare disorder. Kayla Smith, a senior at Warren Area High School, said she’s holding a bowling event to benefit the Children’s Craniofacial Association. She has a craniofacial disorder known as Apert Syndrome. Michele Smith, Kayla’s mother, said the CCA uses September as craniofacial acceptance month. For the past several years, she said the organization has campaigned to promote acceptance. Sometimes, Kayla said, young children will ask about her appearance. She said she tells them she was born that way. “A national acceptance month lets communities know people who have anomalies should be embraced and accepted,” Michele said. “The general population turns away when people look different.” Apert affects one in 160,000 people, Michele said, and involves an underdeveloped mid-face. Fingers and toes also fuse together, she said, and many people with the syndrome lack a full range of motion in some or all of their joints. In addition, Michele said Apert Syndrome has the potential to cause heart defects though Kayla has none. Speech impediments and hearing loss also accompany the syndrome, she said. Kayla said she chose a bowling event since she participates in the sport through Special Olympics. She said she expects around 80 people to attend. Those with physical challenges have a difficult time competing in high school sports, Michele said, adding that in Special Olympics they can compete at their own skill levels. During July, Kayla said she started soliciting donations from local businesses for a silent auction at the event, for which she has made posters. Michele said Crossett, Inc. officials gave gift cards and that the community has provided a lot of support. The event is scheduled for Saturday, Sept. 25, with bowling at 1 and 4 p.m. at Riverside Lanes.

Article Photos

Times Observer photo by Colin Kyler
Raising funds
Kayla Smith holds up a flyer announcing her senior project, a bowling event to benefit the Children’s Craniofacial Association.



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