Thomas Joseph "TJ" Joy, the only child born to Joseph and Angela Joy, was a special little boy with special needs resulting from a rare brain malformation called PMG (PolyMicroGyria). PMG causes feeding problems, developmental delays, intellectual disability and epilepsy. One week shy of TJ's birthday, he suffered a seizure in his sleep, which he was unable to wake from. TJ was declared dead on Nov. 7, 2010. Doctors call it SUDEP: Sudden Unexplained Death of an Epileptic Person.
Angela and Joseph were later told that a seizure mattress alarm could have been purchased preventing his death. The TJ Joy Fund (and The Joy Ride) was established in TJ's memory to raise funds to purchase these seizure mats to prevent future death of seizures and other financial needs incurred by PMG and epilepsy patients. These mats are not covered by insurance.
Although organizers do not have an exact amount of motorcycles, they have opened preregistration and their goal is an estimated 150 bikes. The route will start at Jamestown Harley Davidson in Falconer (11 a.m. registration, noon sendoff) throughout western New York and concluding at the Legion in Forestville where the benefit will be held.
Thomas Joseph “TJ” Joy
There will be live music provided by the Rustic Ramblers and Sean Patrick McGraw. Also attending will be the Maximum Force wrestlers. There will be food, a silent auction, raffles and more. Some of the items raffled include a BlackBerry Playbook tablet computer, children's bench rocker (handmade and donated by Papa's Shop in Forestville), a Keurig Elite coffee and iced tea machine and a Harley Davidson model train set, just to name a few. This is a family friendly event. Doors open at 2 pm.
Pre-registration will be open till Aug 24: $15 per bike, $5 per buddy (free gift)
Day of registration: $20 per bike, $10 per buddy
For those who wish to attend the benefit without participating in the dice run, admission is $10 per person. (Kids 12 and under free).
Meals included free of charge with paid registrations or admissions.)
Monetary donations can be sent to: TJ Joy Fund at M&T Bank, 10 S. Main St., Silver Creek or via paypal to firstname.lastname@example.org.
To donate to the silent auction, call Paula Joy: 965-2926/410-0373
For questions regarding The Joy Ride or benefit, call Angela Joy: 698-7583
Dice Run Event Page: www.facebook.com/events/193293977482865/
TJ Joy Fund Page: www.facebook.com/groups/TJJoyFund/
About PMG: www.pmgawareness.org